First, and update on Cassie's Appt in Anchorage:
The EEG indicated no real change. The DOWN side to this is that we have no real explanation about frequent petit mal activity. The UP side is that, more and more, it is being confirmed that all seizure activity is coming from the same location in the brain. This is necessary if we ever need to rely on surgery to fix this problem (not her Cerebral Palsy, of course - but her seizure activity).
But brain surgery is only a last resort. So her medications have been changed and a grid work for future options has been set up. She will actually be doing away with one medication and changing the other. This gets her back to a baseline, rather than an "add this med to that approach" which we all really wantede. The medication she is switching to does not require the same slow transition the last one did, which is also a plus.
SO MANY of you have had Cassie in your prayers regularly, and we do so much appreciate it.
(Again, for some local folks who get these updates, please refrain from discussing this so openly with Cassie. We want to keep you all in the prayer loop, but we also want to give HER the option about dicussing it.)
The EEG indicated no real change. The DOWN side to this is that we have no real explanation about frequent petit mal activity. The UP side is that, more and more, it is being confirmed that all seizure activity is coming from the same location in the brain. This is necessary if we ever need to rely on surgery to fix this problem (not her Cerebral Palsy, of course - but her seizure activity).
But brain surgery is only a last resort. So her medications have been changed and a grid work for future options has been set up. She will actually be doing away with one medication and changing the other. This gets her back to a baseline, rather than an "add this med to that approach" which we all really wantede. The medication she is switching to does not require the same slow transition the last one did, which is also a plus.
SO MANY of you have had Cassie in your prayers regularly, and we do so much appreciate it.
(Again, for some local folks who get these updates, please refrain from discussing this so openly with Cassie. We want to keep you all in the prayer loop, but we also want to give HER the option about dicussing it.)
In addition, Lighthouse Community Church allowed us to use one of their vehicles or the trip. Our van has headlight problems, door staying shut problems, oil leak problems, and various and asundry other problems! It was a good thing. We were doing 35-40 MPH on stretches of road with 65 MPH speed limits due to near white out and slippery roads. And our trip there and back again were in darkness (Sun up at 10:o8 am and sundown at 3:40 - with a full cloud cover!)
The First Baptist Church of Port Nikiski is a very dear church of supporters and encouragers for our family. I shared with you in our last update about the need for a dryer for our home. Well. the church got word of it at the same time one of their members had a set for sale and the Church paid for it! - - and they also threw in the washer after Kris mentioned that our was just about out, also (Leave it to a man - - I thought it worked fine . . . but the agitator had stopped agitating or something like that, and it did make an awful racket)
Here's a picture of Pastor Harold Lewis, pastor of FBC of Port Nikiski. He's out standing in the snowfall thinking "OK, get this picture out of the way so I can get inside!" Not really.
And this picture is of George, a member of the church who, along with his wife, Barb, was on hand to help us load up the appliances in our van. Oh yeah, The guy on the dumb end of the dolly helping George - That's me! There or in the air!
Gary
