Dear Praying Friends,
Kris was able to sleep at the hotel room last night (Saturday).
Believe me, I had tried to get her to do this earlier, but you
know how mothers can be.
But if she knew what I found out shortly after she left, she
probably would have stayed. Saturday afternoon/evening, the Drs
decided to take her off the remaining anit-siezure medication.
So Cassie and I thought this would make for a real eventful
night. But actually, it was the day today that was really hard,
because it took a while for remaining meds to dissipate.
Cassie has had a number of events today. An "event" is the name I
have given to pushing the button. The button is sort of like a
nurses call button, strapped to her bed post. Whenever either
Cassie or one of us feel she is having a seizure, she/we push the
button. We usually don't keep track of the number of times, but
today we were told at about 5 pm that there had been 31 episodes
today. By 8 PM today, the number was probably up to 50 or so.
All sorts.
Some of them have lasted pretty long. But, in every case, they
were ready with medication that could stop everything if it got
out of hand. And, in the medical sense of her safety and health,
I guess it never got out of hand.
As it stands now, her surgery is still set for sometime Tuesday.
Tonight will be pretty rough. However, although we have not been
told this yet, you'd think they would give Cassie some rest
tomorrow evening/Tuesday morning to ready her for the surgery. We
should find out the game plan tomorrow.
I've added three new pics.
http://home.gci.net/~motherlode/Dad_Cass.JPG This is a typical
position for either Kris or I, with the other ready to jump in.
All the hardware hooked up to Cassie makes it interesting finding
a comfortable position to rest. She's a real hero in my book.
http://www.uwmedicine.org/Facilities/Harborview/ClinicsAndService
s/emailGifts.htm
http://home.gci.net/~motherlode/Email.JPG I know I have said it
over and over, but these e-mails are what makes a big difference
of Cassie. This batch was just yesterday and today. Note the
black box next to her and the cables coiled up to her left.
These plug into a box on the headboard and into connectors that
go into her head. Today, I realized that from a side view, she
reminds me of someone plugged like in the movie Matrix! Only
for her, it's all real.
http://home.gci.net/~motherlode/Kris.JPG Kris is talking to her
Mom on the phone. Family and friends calling has also been a huge
comfort. The recliner she is sitting in is where one of us sleeps
at night.
Scoopin' up the manna! (i.e. living one day at a time on his
sustaining Grace)
Gary Harris
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Alaska Christian College, www.akcc.org
35109 Royal Place
Soldotna, Alaska 99669
Cell 907-252-1574
